Just like many other people, I make no secret of the fact that on behalf of my daughter I claim disability living allowance. I claim it to help with Amy's special needs and to enable her to be as independent as she could possibly be. This independence will always be limited. No matter how much money gets paid to her, she will probably never drive a car, live alone or bear a child.
Think about that for a moment.
Please don't turn away, this isn't a post about Amy and the fact she may, in the future, be unable to get financial support just to live as normal a life as any person with autism can live. This is a post about
you. When parents and carers of special needs children and adults are trying to raise awareness, they aren't doing so because they feel hard done by. They are doing it because they care. About
you.
They, we, all of us need to open our eyes and realise that one day, you too could be classed as disabled. You could find yourself in a position where you have to claim a disability benefit, either for yourself, or, like me, for someone else. No matter how many of you turn your back and say, "never, not me, that won't happen to me", I can tell you something you might not want to hear.
Yes, it might happen to you. Yes, it is a frightening thought that one day you may find yourself living with a disability. And yes, it is easier to turn away from disability if it doesn't directly affect you. But what would happen if you or your child were unexpectedly diagnosed with a condition that left either of you unable to work or live the life you had become accustomed to? What would you do if you heard that a member of your family had just been diagnosed with cancer, epilepsy, autism, or any other disability that would change their life forever? How about if it was you who'd been diagnosed with these conditions and illnesses. It doesn't bear thinking about does it?
That's what I used to think. Then one day I woke up and had 2 epileptic seizures in the same day and was thus diagnosed with epilepsy. It happened out of the blue. I had no warning. Then another day my daughter was diagnosed with autism. I didn't even know what autism was. I don't claim allowance for myself but I do for Amy. Maybe you'll claim it for somebody one day. Maybe you'll claim it for yourself.
Or maybe you won't be able to. Even though it'll be the first financial support you will assume you're entitled to. Ignorance won't help anyone who turns away from an issue that you too, may have to face.